Heart is Good

Dan went for his heart ultrasound at  Unity Hospital today.  I really like that place and the people.  Always good vibes.

Anyway from the results we read on the portal, everything seems normal but we will need to wait to see what the doctor has to say.

Meanwhile, I am in the middle of obtaining a handicap parking permit.  Dan has trouble walking 10 feet without being winded.  The fluid in his lungs, we know, is causing this.  I had to drop him off at the hospital entrance and go park.  

Dan doesn't want me to say too much in detail how he is feeling/doing.  I get that but it's also important for his family and friends to know how he is doing.  We've discussed that.  I don't have to update this blog every day.  I told him it's usually updated after each appointment.  But I can tell you he is having a better day today but overall, he is not improving.  I know that, other people know that and Dan knows it too.  So if he is not up to talking, facetiming, texting, it's because he isn't feeling too good.  He never knows from day to day or hour to hour how he will be feeling.

Right now I'm waiting for a call back from the cancer center.  Since we were told last week that Dan has to get chemo every week, we were waiting for an updated schedule (since they had him down for every 2 weeks).  When I spoke to someone there, she didn't see anything for this week.  I told her that Dr. Kahn was supposed to notify someone next week to update the schedule.  I was then placed on hold and she saw in the notes that indeed that is correct and that Dan is supposed to get chemo every week (wtf).  So now I'm waiting for a call back for his schedule this week and the following weeks.  

And I'm also waiting for a call back from the heart doctor Dan saw last week who prescribed him meds to take 3-4 hours before chemo, 1 hour after and 12 hours after.  Does he need to do that EVERY time or was that a one-time deal to get his body pumped because now he is taking those same meds every day.  The person I spoke with was very nice and said she will send the info to the doctor as high priority.  I told her we needed to know as soon as possible before Dan gets chemo this week.

My god, I just don't recall going through so much crap when my mom had cancer.  This is freaking ridiculous!

I next have to make other calls to get other things taken care of.  It's never-ending it seems.

Special shout out to Terry and Jim for the care package they dropped off at our door.  Sooooo sorry we missed you!  It was incredibly generous and thoughtful.  We love you guys!

Thank you to everyone who continues to write comments and send cards.  I make sure Dan receives your comments left on this blog.  Just be sure to leave your name in the comments, otherwise, it will state "anonymous" and we don't know who they are from.

💜